making muscle wasting history

The Scottish Muscle Network have asked Craigforth Research Consultancy to map the provision of specialist or dedicated services to people with a range of neuromuscular disorders identifying where there are significant gaps in services or barriers to access for people with neuromuscular disorders. The specific objectives are to:

­Map health services in Scotland that are accessed by people who have a neuromuscular disorder in Scotland, particularly those which provide a specialist or dedicated service.

­Explore access, referral and eligibility arrangements to these services and the implications for in practice availability for patients with a neuromuscular disorder.

­Gather the views of patients, their families, health service providers and stakeholders on their views of current health services, particularly specialist services, for people with a neuromuscular disorder.
map the health services availalbe to both children and adults who have a neuromuscular disorder.

During January and February 2010 the research team would like to speak with those affected by Duchenne about their views on current health service provision in Scotland. You can find more info about me on www.rhodamacrae.co.uk and about Craigforth on www.craigforth.co.uk. If you would like to participate please call Rhoda on 0789 6991187 or Murray on 01786 448610 and we can arrange a convienient time to speak with you. many thanks Rhoda