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Action Duchenne's new Takin' Charge Project

What is the Takin' Charge Project?

The project aims to work with several groups of people affected by Duchenne Muscular Dystrophy:

Young Adults with Duchenne 14-19 years:

A programme aimed at developing skills of adulthood that will be additional to their GCSEs or what they are doing at school eg. a 'Duchenne Duke of Edinburgh' award.  It will cover areas such as IT and social media, self advocacy for medical care, workplace skills, skills for independent living including developing a social life, relationships and sexual health.  It will be delivered through active learning workshops.

Parents: 'Letting Go ' project

A project to help parents support their young people to be more independent through Transition to Adulthood.

Siblings: 'What about Us?' project

Focused on meeting the needs of siblings of young people with Duchenne. Workshop based - discussion and fun activities.

Young men with Duchenne 19 years + :

This group will help to develop, present and monitor the project through out steering committee and through facilitating workshops.

This project is in the development stage at the moment and we aim to launch for 14-19 year olds in September 2012.  If you have any ideas please contact Janet or Celine janet@actionduchenne.org  and celine@actionduchenne.org