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Lobby 2011
Film made by ITV Meridian of the Lobby in 2011. Also film of the previous years lobby in London.
Stuart Wickison interview
Stuart is a young person living with Duchenne Muscular Dystrophy and at the conference in 2009 gave his views on research and living with Duchenne. Stuart ha taken part in Action Duchenne's Genius project and was one of the photographers in this years photography exhibition.
Professor Steve Wilton interview
Professor Wilton is from the University of Western Australia and has developed many of the novel sequences of antisense oligonucleotides for exon skipping in Duchenne.
Dr Steve Shrewsbury interview
Dr Shrewsbury is the chief medical officer for AVI Biopharma in the USA and in partnership with the MDEX consortium in the UK is currently running clinical trials with their morphlino based exon skipping drugs.
Professor Kate Bushby interview
Professor Kate Bushby leads the clinical centre for Duchenne in Newcastle and has set up the Treat NMD EU project that is setting up resources to overcome hurdles in translational research and best clinical practice.
Interview with Eric Hoffman
Professor Eric Hoffman from Washington USA worked in 1986 with Louis Kunkel and team to clone the sequence of the dystophin gene. This was a vital step forward in our ability to be able to develop some of today's drug breakthroughs. Eric is now the head of the Synergy network for Duchenne an international research partnership.
Ataluren Clinical Trials and the PTC Catalyst drug programme
Dr Ellen Welch from PTC Therapeutics in the USA updates the conference on the clinical trials for Ataluren and the companies drug development programme for Duchenne.
Talking with your children about Duchenne
Dr David Schonfeld from Cincinnati Children's Hospital has given an excellent introduction into ways of discussing very difficult topics relating to Duchenne with your children.
Carl Tilson interviews Steve Shrewsbury and Ellen Welch
Carl Tilson a young person from Manchester living with Duchenne interviews Dr Steve Shrewsbury from AVI Biopharma and Dr Ellen Welch from PTC Therpuetics at the 2009 Action Duchenne conference.
Race Against Time Campaign Lobby of Parliament 2009
Action Duchenne Lobbies parliament in 2009 to win more funding for research
Dr Matthew Wood University of Oxford
Dr Wood explains exon skipping and his teams research to improve the delivery of antisense oligonucleotides.
What is Include Duchenne?
Janet Hoskin describes the education programme that Action Duchenne has developed to support young people with learning and behaviour problems.
Family from Blackburn at the Lobby 2009
View of the Lobby of Parliament in June 2009
