What is your background, where are you from, what do you do, what is your connection to Duchenne?

I am an art and design teacher in Colchester, the town where I grew up. I have been running on and off for the past 5 or so years and previously have completed a half marathon raising money for Action Duchenne in 2015. Running the London marathon has been on my bucket list for a while and to actually now be running it raising money for this amazing charity is just fantastic. Action Duchenne has been a charity close to my heart since a very close family friend had two sons, both diagnosed with the condition. The news hit us all like a tonne of bricks and it was really hard to know how to help. Obviously general emotional support for all the family was the first response; offering help where we could, Being there to talk to, giving out hugs... This then turned in to wanting to do more, raising awareness and money in aid of the charity that have supported this precious family so much.

Why did you take on the challenge of The London Marathon this year?

I wanted to set myself a challenge, something that people would get behind and support which in turn would raise awareness of Action Duchenne and benefit families living with Duchenne. Families that are making small and huge physical and emotional adjustments, families that are having to re-address day-to-day living constantly thinking about the future and trying to preserve some kind of ‘normal’. I have supported events for the charity previously but felt compelled to do something myself. The Baker family mean the world to me and running 26.2 miles is just a small drop in the ocean in comparison to some of the challenges they have faced as a family.

How are you preparing for the event?

Training is going well, my furthest run to date is 18miles. I try to tun 4 times a week, and during the winter months that has been difficult!!

How have the Action Duchenne team helped you in your training?

I have a received a great training vest, balloons for my events and various other treats! Also email support and the reassurance that the team are at the end of the phone if I need them. The marathon Facebook page has been good to see how everyone is getting in with training too.

If you'd like to support Charlie's's London Marathon efforts you can donate to her Just Giving page here

Further reading