Hear from our Skydivers!

12 amazing fundraisers jumped out of planes across the country on Saturday 7 July 2018. They raised a fantastic £9,000 to help us achieve our vision of a world where lives are no longer limited by Duchenne muscular dystrophy.Read more

Spotlight on Fundraisers July 2018

Here are some of our wonderful fundraisers for this month!Read more

Lots to take away from the PPMD Conference

Last week, Neil Bennett, our new Director of Research attended the Parent Project Muscular Dystrophy (PPMD) Conference in Arizona, USA.   Neil provided updates during his time at the Conference and we are pleased to share these with you.Read more

Spotlight on Fundraisers June 2018

Here are some of our wonderful fundraisers for this month, including wing walkers and sky divers!Read more

The Forgotten Voice - living with Duchenne as a sibling

Hazel has written this piece to help fellow siblings of young people living with Duchenne to know they are not alone.Read more

Interview with Abbie and Mark Silverman

Watch the dedicated Abbie and Mark Silverman speak with Peter Duffy at their 10th Conference.Read more

Interview with Jon Powton

Hear from the fantastic Jon Powton when he spoke with Peter Duffy at the #ADConf17 about his life, fostering and living with Becker muscular dystrophy.Read more

Life at 40! - by Bryan Purdue

And you may ask yourself, "Well... how did I get here?". I decided to make start writing my blog again about my life with Duchenne Muscular Dystrophy. I will also write about my great family and friends. Hope you enjoy.Read more

Just a big kid at heart - disability from a sibling's perspective

Emily's blog addressed disability from a siblings perspective as her youngest brother lives with Duchenne muscular dystrophy. For some children that innocence doesn’t last as long as it should, especially when you have a sibling with a condition such as DMD.Read more

Spotlight on Fundraisers February 2018

Check out some of our wonderful fundraisers; Sharon & Justin Roberts, Charlie Hancock, Alex Kennedy & Lucy GeorgeRead more

Marathon Heroes - Karen Barratt

I have previously run Brighton marathon for Action Duchenne and wanted to support them again. I’m the proud mum to 3 children, my middle child Ellis has Duchenne.Read more

Why Harry Hill is a patron of Action Duchenne

Our wonderful patron and award winning comedian and presenter, Harry Hill is best known for You've Been Framed and Harry Hill's TV Burp.Read more