The Forgotten Voice - living with Duchenne as a sibling

Hazel has written this piece to help fellow siblings of young people living with Duchenne to know they are not alone.Read more

Interview with Abbie and Mark Silverman

Watch the dedicated Abbie and Mark Silverman speak with Peter Duffy at their 10th Conference.Read more

Interview with Jon Powton

Hear from the fantastic Jon Powton when he spoke with Peter Duffy at the #ADConf17 about his life, fostering and living with Becker muscular dystrophy.Read more

Life at 40! - by Bryan Purdue

And you may ask yourself, "Well... how did I get here?". I decided to make start writing my blog again about my life with Duchenne Muscular Dystrophy. I will also write about my great family and friends. Hope you enjoy.Read more

Just a big kid at heart - disability from a sibling's perspective

Emily's blog addressed disability from a siblings perspective as her youngest brother lives with Duchenne muscular dystrophy. For some children that innocence doesn’t last as long as it should, especially when you have a sibling with a condition such as DMD.Read more

Spotlight on Fundraisers February 2018

Check out some of our wonderful fundraisers; Sharon & Justin Roberts, Charlie Hancock, Alex Kennedy & Lucy GeorgeRead more

Marathon Heroes - Karen Barratt

I have previously run Brighton marathon for Action Duchenne and wanted to support them again. I’m the proud mum to 3 children, my middle child Ellis has Duchenne.Read more

Why Harry Hill is a patron of Action Duchenne

Our wonderful patron and award winning comedian and presenter, Harry Hill is best known for You've Been Framed and Harry Hill's TV Burp.Read more

Here and now - disability from a sibling's perspective

Emily's blog addressed disability from a siblings perspective as her youngest brother lives with Duchenne muscular dystrophy.Read more

Perfection is......you decide - by Shelley Simmonds

Shelley is one of our wonderful Trustees and Mummy to two adorable children. In her blog, Shelley talks about how her perspective on 'perfection' has changed in the 4 years since her son, Fraser was diagnosed with Duchenne.Read more

Nightrider 2018

Find out more about the Nightrider cycling challenge series taking place this summer. We cover what it's about, what's involved & whether it's the right charity challenge for you! We hope you'll join us!Read more