Progression of time - Benjamin James

Taken from Benjamin James' blog HorizonsofHope - living with a neuromuscular condition, feelings, frustrations and hope. Read more

Things like this don’t happen to you… do they? - a Duchenne Dad's perspective

"It’s a bit of a ‘release’ that will help to get things off my chest when I need to and maybe even help others in similar situations. Us men are well known for not being ‘talkers’ but rather than just let things build up I find writing/typing my thoughts does help." Read more

Dave's story

In the space of around 7-8 weeks I have learned so much about Duchenne Muscular Dystrophy and Action Duchenne. The stories have all been deeply moving. Putting all of this together has inspired me so much, so much so that I want to help Action Duchenne and those affected by Duchenne. Read more

Spotlight on Fundraisers January 2019

Here are some of our wonderful fundraisers for this month, including the Abseilers, and London Landmarks Half Marathon participants. Read more

Redefining 'normal' - disability from a sibling's perspective

Emily's blog addressed disability from a siblings perspective as her youngest brother lives with Duchenne muscular dystrophy. "When you have a sibling who has a condition such as DMD, you’re ‘normal’ isn’t the same as everyone else’s ‘normal’ your age, and that doesn’t really change through the various stages of life no matter how old you get." Read more

Hear from our Skydivers!

12 amazing fundraisers jumped out of planes across the country on Saturday 7 July 2018. They raised a fantastic £9,000 to help us achieve our vision of a world where lives are no longer limited by Duchenne muscular dystrophy. Read more

Spotlight on Fundraisers July 2018

Here are some of our wonderful fundraisers for this month! Read more

Lots to take away from the PPMD Conference

Last week, Neil Bennett, our new Director of Research attended the Parent Project Muscular Dystrophy (PPMD) Conference in Arizona, USA.   Neil provided updates during his time at the Conference and we are pleased to share these with you. Read more

Spotlight on Fundraisers June 2018

Here are some of our wonderful fundraisers for this month, including wing walkers and sky divers! Read more

The Forgotten Voice - living with Duchenne as a sibling

Hazel has written this piece to help fellow siblings of young people living with Duchenne to know they are not alone. Read more

Interview with Abbie and Mark Silverman

Watch the dedicated Abbie and Mark Silverman speak with Peter Duffy at their 10th Conference. Read more

Interview with Jon Powton

Hear from the fantastic Jon Powton when he spoke with Peter Duffy at the #ADConf17 about his life, fostering and living with Becker muscular dystrophy. Read more