Father to Katie, Cormac and Ronan, we found out that Cormac had DMD in 2014 after trying to get to the bottom of his antisocial behaviour. Cormac has a nonsense mutation and this led to working with Action Duchenne and other DMD charities to fight for the approval of Translarna in Scotland. Cormac was the first patient to be prescribed Translarna through the NHS in the UK via an Individual Patient Funding Request, which is how he continues to receive the drug today.

Gary said: “I’m very excited to be ask to work with Shelley, her team and the whole Duchenne community in helping to advise where technology can help to enhance our lives. I am a strong advocate for the use of technology in helping to make patients and carers life easier and hope to use my experience within IT to accelerate this in an increasingly digital world. Please send any ideas you have to me, I’m sure there’s lots out there.”