I am mother to William (4) and Phoebe (1) with my husband Matt. We live in a lovely village in north Hertfordshire.

William was diagnosed with Duchenne muscular dystrophy in January 2016 at the age of just 3. I had no prior knowledge of Duchenne and through support at GOSH I found Action Duchenne. Friends and family have actively fundraised over the past year for the charity in William’s name.

Myself and Matt attended the conference in November 2016 and from that I decided the time was right and I wanted to be part of the charity as a trustee, giving my time to help our boys.

I am a full time mother at present, however have professional experience in project and events management.