Hi, I’m Lesley Wegg, married to Leslie Wegg and we have two children, Melissa and Ashley. We live in East Yorkshire.

Ashley was diagnosed with Duchenne just before his 7th birthday in July 2014. I attended my first Action Duchenne Conference four months later and was astounded with the amount of information I learnt. The Conference is now a highlight of my year, listening to the experts about potential treatments and hearing how the projects Action Duchenne has funded are progressing.

It is also lovely to meet Action Duchenne supporters and spend time with families facing the same challenges.

I work full time as Head of Operations at Beverley Building Society.

I have been a Trustee for Action Duchenne since February 2015 and with 30 years of Banking experience, I sit on The Finance Committee. I am an active Fundraiser myself and Chair The Fund Raising Committee. We welcome all kinds of new fund raising ideas – the quirkier the better, so please do get in touch with your ideas!