I live in Barnet with Abbie and our son Thomas, having been a chartered Town Planner since 1998 working for a local authority in Hertfordshire.

I have been a trustee of Action Duchenne since 2008, soon after Thomas was diagnosed with Duchenne.  Since joining the charity, I have held a wide range of research and campaigns responsibilities.

Action Duchenne has been instrumental in delivering improved outcomes for the Duchenne community and I will continue to work closely with the staff and Trustees, to achieve even more for those living with Duchenne and their families.