I am the Treasurer on the Board of Trustees for Action Duchenne. I have a background in finance and am a Chartered Accountant who works in the city of London. I volunteered to use my skills and put them to some good.
I also have two children and whilst they do not have Duchenne I think it is the responsibility of everyone to help those around them; raising funds to find improvements for those diagnosed with Duchenne shouldn’t fall on the shoulders of their immediate family and friends.
Having just attended the 2018 Duchenne conference I am in awe and very proud of what our small team of staff are able to achieve. I look forward to the future with hope to what new research we fundraise for may bring.
Sarah