A new study has started at Queen’s University Belfast.  They are looking for young people aged 16-24 with a life-limiting condition and who live in Northern Ireland.  They would like young people to use the ‘passport’ for up to 9 months and to be interviewed at intervals about their experiences.  For more information about the study please click here to go to the study website.

The aim of the study is to find out how helpful a patient-held record is and for further information click here.