Campaign for Action Duchenne

Action Duchenne lead our families, friends and supporters to work together to make change happen.Read more

The campaign for Translarna

Since the start of 2015, Action Duchenne campaigned tirelessly for Translarna (ataluren) to be made available, exerting maximum external pressure upon NHS England, the National Institute of Health & Care Excellence, and the Scottish Medicines Consortium whilst working within their evaluation processes.Read more

Access to medicines explained

Action Duchenne give you details on the EAMS programme to try and help explain explain the programme run by the MHRA and its importance to the Duchenne communityRead more

Template letter to MP

If you are able to do just one thing today please get in touch with your local MP to ask them to become a #DuchenneChampionRead more