Raxone: A Guide for the Community

In partnership with fellow organisations, Muscular Dystrophy UK, Duchenne UK, the Duchenne Family Support Group, and DMD Pathfinders, we have produced two guides for families and healthcare professionals to educate and answer questions on the drug and EAMS process. Read more

Campaign for Action Duchenne

Action Duchenne lead our families, friends and supporters to work together to make change happen. Read more

The campaign for Translarna

Since the start of 2015, Action Duchenne campaigned tirelessly for Translarna (ataluren) to be made available, exerting maximum external pressure upon NHS England, the National Institute of Health & Care Excellence, and the Scottish Medicines Consortium whilst working within their evaluation processes. Read more

Access to medicines explained

Action Duchenne give you details on the EAMS programme to try and help explain explain the programme run by the MHRA and its importance to the Duchenne community Read more

Template letter to MP

If you are able to do just one thing today please get in touch with your local MP to ask them to become a #DuchenneChampion Read more