Takin' Charge

Takin’ Charge was Action Duchenne’s Lottery-funded Transition to Adulthood Project for young people with Duchenne aged 14 – 19 years. We are now working on a follow up project for 2018. Read more

Learning and behaviour in Duchenne

Find out about the established behaviour and learning risks in Duchenne and get the tools to help you. Read more

Carrier workshops

You will get an insight into the genetics behind being a Carrier, along with finding out about up to the minute screening tests and procedures. You will have the chance to meet other families, discuss your symptoms and receive support from the group. Read more

Cardiac focus groups

We wished to learn about the range of views people living with Duchenne may have about ICDs as a potential treatment and how it might be introduced and talked about with people living with Duchenne and their families. Read more

Find work experience

Action Duchenne are here to help support you in finding work experience or internships to suit you personally Read more