Recently diagnosed families

The Action Duchenne team have supported hundreds of families throughout their journeys. We are here for you when you are ready. Read more

Parents of juniors living with Duchenne

Duchenne muscular dystrophy is a rare condition, and many people haven't heard of it before. Your child may have never met another person living with Duchenne. Read more


We have always understood the importance of supporting teenagers living with Duchenne and their families through this stage in their life. Read more

Adults living with Duchenne muscular dystrophy

We have always advocated for the best standards of care for people living with Duchenne. Early on, we identified the importance of helping young people living with Duchenne to equip themselves with the skills and power to achieve the best life possible. Read more

Female carriers and non-carriers

We hold Carrier workshops and support sessions and have produced a ground-breaking leaflet ‘Being a Carrier for Duchenne Muscular Dystrophy’. Read more


We understand that being a Grandparent of a young person living with Duchenne is a unique position to be in. We are here to support you. Read more

Education professionals

Find out about the established behaviour and learning risks in Duchenne and get the tools to help you. Read more


We understand the importance of nurturing siblings of people with complex needs. Read more