Vivek Gohil - young person living with Duchenne

Watch Vivek Gohil chat to Peter Duffy at our International Conference 2017. Vivek is a co-editor with Peter on the media and campaigns channel Muscle Owl. Read more

Lizzie Deeble - Family Ambassador

Lizzie is a much loved part of the Action Duchenne family following her son Sebastian's diagnosis with Duchenne in 2016. Read more

Manjula Gohil - parent story

Manjula Gohil, mother of the wonderful Vivek, gave us an insight into her life and how things have changed since Vivek was diagnosed with Duchenne. Read more

Shelley Simmonds

Fraser is the happiest boy you could ever wish to meet, we are proud to be his mummy and daddy. His sister is amazingly kind-hearted and gentle with him, he could not ask for a more loving sibling. We live month by month and take things as they come, our mindset to life has changed and we appreciate every day. Nothing escapes us, we take nothing for granted. Read more

Adam - Taekwondo Champ!

Adam, who started Taekwondo when he was six years old, has worked his way through each of the belts, despite his condition deteriorating. Adam regularly attends Dorset Marital Arts club with a smile on his face. Read more

Linda Smith - Grandparent story

Linda is Nana to 5 grandchildren, including Samson who is 5 and lives with Duchenne. Read more

Mitch Coles - "Living my life the way I want to live it"

Mitch Coles studied Graphic Design at University and now lives with his partner and young daughter. Mitch took part in a session at the Action Duchenne International Conference 2017 and we are delighted to share his story with you. Read more

Angela Stringer - being a carrier of Duchenne

Angela is a long standing staff member of Action Duchenne, The DMD Registry Curator, Patient Advocate, Eupati Fellow and general font of knowledge! Read more

Jo Eames - recently diagnosed parent story

Jo Eames speaks about her son William and their journey since diagnosis. Read more

Rob and Nisha Laid - junior parents' story

Rob and Nisha Laid talk about their son, Alex and their experiences over the past few years since diagnosis. Read more

The Wards - Family Ambassadors

Zoe and Ben have been exceptionally strong since their amazing son, Dexter was diagnosed with Duchenne. Taking part in a number of fundraising events, we are proud to have them as Action Duchenne Family Ambassadors. Read more

Lizzie Deeble - recently diagnosed parent story

It is hard to describe the impact of Sebastian's diagnosis, not just for my husband James and I but for our friends and family and all who love us. However, we are gradually picking up the pieces of our world and putting it together again. It will always look different than it did, but we are beginning to find light through the darkness. Read more

Michelle Wilkinson - personal story

MIchelle Wilkinson is a 20 year old student who is a manifesting carrier of Duchenne muscular dystrophy. Hear from her and her dad, Andrew. Read more

Venetia James - parent story

Venetia is Mum to Benjamin who is a 20 year old Student and still walks despite living with Duchenne muscular dystrophy. Hear from Venetia as she talks about her story. Read more

Benjamin James - Personal Story

Benjamin is a 20 year old Student, an Intern at Action Duchenne and still walks despite living with Duchenne muscular dystrophy. Read more

The Greenfield-Smiths - Family Story

Nicole Greenfield-Smith is Aunty to a little boy diagnosed with Duchenne in 2015, hear about their journey as part of a close family Read more

The Ker-Lindsay's - Family Story

John Ker-Lindsay was disgnosed with Duchenne at 4, hear from his parents about their journey and hope for the future Read more

Lynnette Ellison - Newly diagnosed parent story

Lynnette's son, Samson was diagnosed with Duchenne in October 2015 at the age of 5. Hear from Lynnette and the hope she has for the future. Read more