Lynnette's son, Samson was diagnosed with Duchenne in October 2015 at the age of 5. Hear from Lynnette and the hope she has for the future. 

"In October 2015 our lives changed forever.

Our son, Samson (3) was diagnosed with Duchenne muscular dystrophy.

We died that day.

But then, when we thought we could not recover, we worked hard to immerse ourselves in the global community, gaining hope from each other and our friends and family and from our children that Duchenne should not stop us making the most of the gift of life we have.

It’s funny how people always want to help and give hope.

Duchenne has not made Samson less loveable, caring, kind, funny and bright. It has not stopped him joining in with our kitchen discos, or playing with and making friends for life. It has made us appreciate everything we have and hold so much hope for the future.

With the help of Action Duchenne and the global research community we hope to see our boy grow into a man who will change the world in his own way.

We need the global community to take on the challenge of finding a cure and treatment for boys like Samson, to give them the chance of a long life."

- Lynnette Ellison (Parent)

Read about the Ellison 24 hour cycle ride!

Feeling inspired to get involved?