Action Duchenne https://validator.w3.org/feed/docs/rss2.html Work For Us Upcoming Events and Challenges Register your interest for London Landmarks Half Marathon 2027 Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. What will you do to mark World Duchenne Awareness Day? Webinar Series 2026 Sarepta Provides Regulatory Update on AMONDYS 45 and VYONDYS 53 Webinar Series 2026: Duchenne and the Brain Webinar Series 2026: Movement that Works: Physiotherapy, Sports and Duchenne Webinar Series 2026: Neurodiversity, Learning Difference and Duchenne Parent/Carers In-Person Meet-Up: London Serpentine Bar and Kitchen Parent/Carers In-Person Meet-Up: Leeds Holiday Inn Express Parent/Carers In-Person Meet-Up: Newcastle Holiday Inn Express In-Person Support Events Edgewise Therapeutics Announces Long-Term Sevasemten Data in Becker Muscular Dystrophy Webinar Series 2026 Recording: Women’s Health: Gentics and Decisions Summer Webinar (Recording)- How to Manage the Impact of DMD on Family Members – Parents/Caregivers and Siblings REGENXBIO Reports New Positive Interim Data from AFFINITY DUCHENNE Trial Welcome to our Runner Hub Residential Weekend for Young People Living with Duchenne Donate by cheque and post Entrada Therapeutics: 2026 Clinical Trial Plan & Progress Time Out – for Mums Webinar 2026 Recording: Neurodiversity, Learning Difference and Duchenne with Dr James Poysky Training Plans and Injury Prevention The DMD Registry Residential Weekend for Young People Living with Duchenne Update on givinostat NHS England decision – and what it means for families Nutrition for runners In Loving Memory of Christopher Whittaker  Action Duchenne Fundraiser Guides Rare Disease Day In memory of Leon Thorn In-Person Meet Up: Naidex Event, Birmingham NEC Webinar Series 2026: Women’s Health, Genetics and Decisions Solid Biosciences Provide SGT-003 Gene Therapy Trial Updates Sarepta Announces Topline Three-Year EMBARK Results: Long-Term Performance of ELEVIDYS Gene Therapy Help and support Register for Support Give in memory and help us support every family, every time. Independent Data Monitoring Committee Recommends Increased Dose in ELEVATE-44-201 Study We’re Hiring: Operations & Governance Officer What we do Support Us Join Action Duchenne for Rare Disease Day 2026 Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne Mum Home