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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Summer 2026 In-Person Family Days
    • Schools
    • End of Life and Bereavement
  • Community Summit
    • Action Duchenne Community Summit 2026 (Previously International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

We’re Hiring: Operations & Governance Officer

You are here: Home / We’re Hiring: Operations & Governance Officer
We're hiring

We’re Hiring: Operations & Governance Officer

Role: Operations & Governance Officer
Responsible to: Chief Executive Officer
Pay Band: Band 3, point 3 (£32,379 FTE)
Hours: 37.5 hours per week (Full-time)
Key Contacts: Senior Leadership Team, Trustee Board, Finance, auditors, Charity Commission, OSCR, Fundraising Regulator
Responsible for: No line management

Introduction to Action Duchenne:
Action Duchenne supports, empower and equip every DMD community in their journey from diagnosis and beyond. Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne, and has a number of staff with direct lived experience.

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:

  • Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
  • Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
  • Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
  • Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
  • Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.

Main Purpose of the Role:
To ensure the charity operates within a robust governance framework and maintains high standards of compliance, risk management, and operational efficiency. This role will lead on policy development, governance reporting, administration progression and process improvement to support strategic objectives and regulatory requirements.

Key Responsibilities

  • Governance and Compliance:
    o Maintain and update governance policies and registers, and development of Standard Operating Procedures.
    o Act as the primary liaison for Board governance matters, including preparing Board papers, ensuring timely reporting and minuting.
    o Monitor compliance with charity law, GDPR, and other regulatory requirements.
    o Coordinate annual policy reviews and ensure staff adherence.
  • Risk and Audit:
    o Maintain and update the organisational risk register for quarterly Board review.
    o Support internal audits and external compliance checks.
    o Develop and implement risk mitigation strategies.
  • Operational Efficiency:
    o Review and streamline operational processes to improve efficiency, including IT and telephony, authorisations, filing and recruitment.
    o Support budget monitoring and reporting in collaboration with Finance.
    o Oversee contract management and supplier compliance.
  • Reporting and Data:
    o Prepare governance and operational reports for the CEO and Board.
    o Ensure accurate documentation and record-keeping for governance purposes.
    o Be the organisation’s Data Protection Officer.
    o Minute team meetings.

NB: This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Person Specification:

Knowledge and Experience

Essential Criteria:

  • Strong understanding of governance frameworks and compliance requirements in the charity sector.
  • Experience in charity governance or charity operations.
  • Experience in policy development and risk management.
  • A demonstrable record of working with confidential data.
  • An understanding of and commitment to Equal Opportunities and the ability to promote this in the day-to-day work of the post.

Desirable Criteria:

  • Knowledge and familiarity with GDPR and charity law.
  • Familiarity with financial reporting and audit processes.

Skills and Aptitude

  • Aligned with Action Duchenne’s values.
  • Excellent organisational and analytical skills.
  • Ability to communicate effectively with senior stakeholders and external regulators.
  • Passionate about improving the lives of young people, adults and their families living with Duchenne.
  • Ability to be assertive but also have empathy and ability to be sensitive with colleagues, volunteers and people we support.
  • Ability to work as part of a team and work on own initiative and to deadlines.
  • Empathetic and can communicate well with audiences of all levels.

Closing Date: Monday 16th March, 9:00 am

How to apply: Please complete the application form to apply for the post.

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62 Prince Street
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BS1 4QD

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