SAVE THE DATE for the Action Duchenne Annual International Conference 2025
We are excited to announce the date for the Action Duchenne Annual International Conference 2025!
Taking place on Friday 14th and Saturday 15th of November at Leonardo Hotel in Hinckley, we hope that you and your family will join us to make our 2025 event our best one yet! We will bring together individuals living with Duchenne and their families, patient experts, clinicians, healthcare professionals and equipment providers. Register your interest now to be a part of two days of learning, connection and support which will inspire and empower you wherever you are in your Duchenne journey.
Our conference truly is a place for the whole family
With 20+ sessions over two days covering a huge variety of topics and bringing you the most up to date information, we’ll also have our professionally run creche for younger children, the HangOut for teens and our PitStop to offer time out and support for adults whenever they need it.
Our Current Events
There are lots of ways we can support you and your family. Please find links to our online support groups , support for schools and to register for our newly launched webinar series. If you would like to talk to one of our Support Officers, please email: info@actionduchenne.org
Become an Action Duchenne Member
We need YOUR support so that we can continue to support those living with Duchenne muscular dystrophy. Find out how YOU could support us by becoming a valued member, making a donation or fundraising for us here.
