Support
From the first phone call, I felt completely understood and supported. Speaking to other DMD parents who work for Action Duchenne has truly been a lifeline for me, and they have never wavered in their support and patience.
Lizzie Deeble, parent
While we hope that research and clinical trials will one day lead to a treatment, or cure, for Duchenne, we believe it is vital to support families living with the condition today. We support families from diagnosis through their whole Duchenne journey.
Community
We unite and support families, educating about Duchenne and raising the profile of the condition.
Our Community Summit brings together Duchenne families, clinicians, therapists, researchers, pharmaceutical companies and, most importantly, those living with Duchenne muscular dystrophy.
Find out more about our ongoing work, webinar series, in-person events and how you can get involved in our monthly newsletter.
We can support you and your family wherever you are in your journey. If you’d like one of our Support Team to contact you, let us know here and we will be in touch. You can also find out more about our monthly support groups and our group counselling programme.
