The most common thing we hear from Duchenne mums is the struggle to juggle it all, the pressure to hold it all together and the total lack of any space for themselves. So even if it’s just once a month, this space is just for you. A space to come together with other Duchenne mums who are often feeling the same. A safe space to say the things you can’t say to other people, to share the dark humour and the things that you can’t quite manage to laugh about yet. A port in a storm. The brilliant club that no one chose to be a part of. You don’t have to do it alone.
