Our mission is to support, empower and equip every DMD community in their journey from diagnosis and beyond.
Your support means joining us as we support families from diagnosis to bereavement.
Your support helps us change the future for everyone living with Duchenne.
Your support gives families hope.
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£5 could help fund a family’s travel costs to attend our conference, making it accessible to all budgets
£10 could develop a bitesize science video to provide insight and understanding to our community
£15 could put a Duchenne family member through an 8-week counselling course
£25 could put a child or young person with Duchenne through a mentoring course to build their confidence and positivity
£50 could help to fund 6 young people with Duchenne to attend a 10-session program to meet their peers, make friends and learn more about equity and inclusion
Harry was diagnosed with Duchenne muscular dystrophy in 2019
When Harry was diagnosed with Duchenne Muscular Dystrophy in 2019, Ben and his family were utterly devastated and didn’t know where to turn. Feeling isolated and alone, they struggled to find support and to feel that anyone really understood.
“Making contact with Action Duchenne provided a lifeline. They understood, they were living our experience too and they helped us find hope and positivity. They were there for us when we needed them and have introduced us to the Duchenne community through conferences and activities.”
