Our mission is to support, empower and equip every DMD community in their journey from diagnosis and beyond.
Your support means joining us as we support families from diagnosis to bereavement.
Your support helps us change the future for everyone living with Duchenne.
Your support gives families hope.
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£5 could help towards a family’s travel costs to attend our annual conference to connect, be informed and get the support they need – making it accessible to everyone
£10 could fund an in person meet up for Duchenne families to connect to local families at, speak to our support team and not feel alone in their journey
£15 could put a Duchenne family member through an 8-week counselling course giving them the support they need as their journey progresses
£25 could put a young person with Duchenne through an online ‘lived experience’ mentoring programme designed to role model what is possible and increase their confidence and positivity
£50 could fund a young person and their family on an accessible residential where they make friends, join personal development workshops and take part in accessible sports
Harry was diagnosed with Duchenne muscular dystrophy in 2019
When Harry was diagnosed with Duchenne Muscular Dystrophy in 2019, Ben and his family were utterly devastated and didn’t know where to turn. Feeling isolated and alone, they struggled to find support and to feel that anyone really understood.
“Making contact with Action Duchenne provided a lifeline. They understood, they were living our experience too and they helped us find hope and positivity. They were there for us when we needed them and have introduced us to the Duchenne community through conferences and activities.”
