Hear From Our Community

I was introduced to Action Duchenne by the Muscle Team in Newcastle shortly after Oliver’s diagnosis in 2017. In those early, overwhelming days, their …

Turning Challenges into Change – Our Story with Action DuchenneRead More

Louise's London Marathon Story Written by Louise Ruddick "My relationship with Action Duchenne came about very spontaneously at the beginning of …

Louise’s London Marathon StoryRead More

Parent Story: Scott and Vicki share their story of their son's diagnosis of Duchenne and their family's journey. “I was just sitting in the room …

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.Read More

Written by Victoria Edwards, Action Duchenne's Fundraising Officer and mum to Dougie (who lives with Duchenne) and Allie. Feeling Blue "This …

Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne MumRead More

Gemma held a fundraiser in memory of her incredible brother, Christopher Whittaker, who sadly passed away in November 2023 at the age of 28 due to …

In Loving Memory of Christopher Whittaker Read More

By Jack Waddington We are pleased to feature a very special guest blog for World Duchenne Awareness Day 2025. This blog has been written by Jack …

Guest Blog: Birthday BoyRead More

Leon’s life was full of courage, laughter, and love. Though he lived with Duchenne Muscular Dystrophy, it never defined him. Leon was brave, …

In memory of Leon ThornRead More

Guest Blog: Duchenne Parents Karen and Jamie Thompson share their experience of attending the Action Duchenne Annual International …

Guest Blog: Duchenne Parents Karen and Jamie Thompson share their experience of attending the Action Duchenne Annual International ConferenceRead More

The Heart of Care We have had some key reminders of what we are working towards as a charity over the last few weeks. Volunteer’s Week (2nd - 8th …

The Heart of CareRead More

Written By Alex Berbank 15 Minutes a Day I've really enjoyed getting into the frame of mind to look at my mental health. Before this week I …

Mental Health Awareness Week: Alex’s JournalRead More