Honouring George and Finding Community Remembering George one year on. "If I'd never experienced George having Duchenne, I wouldn't be half the …
I was introduced to Action Duchenne by the Muscle Team in Newcastle shortly after Oliver’s diagnosis in 2017. In those early, overwhelming days, their …
Turning Challenges into Change – Our Story with Action DuchenneRead More
Louise's London Marathon Story Written by Louise Ruddick "My relationship with Action Duchenne came about very spontaneously at the beginning of …
Parent Story: Scott and Vicki share their story of their son's diagnosis of Duchenne and their family's journey. “I was just sitting in the room …
Written by Victoria Edwards, Action Duchenne's Fundraising Officer and mum to Dougie (who lives with Duchenne) and Allie. Feeling Blue "This …
Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne MumRead More
"Making contact with Action Duchenne provided a lifeline": Find out why Ben Dolling decided to run the London Marathon dressed as a parrot! Harry …
“Making contact with Action Duchenne provided a lifeline”Read More
Action Duchenne have monthly online meet-ups for Duchenne dads, mums and grandparents, facilitated by our Family Support Officers and designed to …
Gemma held a fundraiser in memory of her incredible brother, Christopher Whittaker, who sadly passed away in November 2023 at the age of 28 due to …
By Jack Waddington We are pleased to feature a very special guest blog for World Duchenne Awareness Day 2025. This blog has been written by Jack …
Leon’s life was full of courage, laughter, and love. Though he lived with Duchenne Muscular Dystrophy, it never defined him. Leon was brave, …
Guest Blog: Duchenne Parents Karen and Jamie Thompson share their experience of attending the Action Duchenne Annual International …
The Heart of Care We have had some key reminders of what we are working towards as a charity over the last few weeks. Volunteer’s Week (2nd - 8th …
