Teachers and professionals
It is important for children and young people living with Duchenne muscular dystrophy to have the right support at school, but sometimes it’s hard for teachers and education professionals to know where to begin.
Helpful resources
Below are a few of the most requested resources to help Duchenne families and their teams of professionals to put the right support in place at school. If you have any questions or need further support, please contact us via info@actionduchenne.org.
Schools Information and Support Pack
Our free information and support pack provides schools with a good understanding of what pupils living with Duchenne, and their families, need.
Read moreJoin our Supporting Schools Facebook Group
A group for professionals working in primary and secondary schools supporting children and young people living with Duchenne. A place to ask questions, share best practice and support each other.
Read moreStep by step guide to the EHCP
In this session Clair Warner, SEATTS PD Team Manager, shares her decades of specialist knowledge and experience to help our families navigate the education, health and care plan (EHCP) process.
Read moreDuchenne explained
This area covers topics such as learning and behaviour risks in Duchenne, the early symptoms as well as how these symptoms progress over time.
Read moreSupporting you
In the help and support section you’ll find support for families, young people and adults living with Duchenne and education professionals.
Read moreInclusive PE lessons
The guide offers a range of practical ways for schools to enable children and young people with Duchenne to access PE in an equitable way.
Read moreWebinar – how to talk with children about Duchenne
Helping Duchenne parents, carers and family members to find the ‘right’ words to talk with their child about Duchenne muscular dystrophy, and to understand more about their and their child’s feelings and thought processes.
Read morePhysiotherapy Webinars
Marion Main, Lead physiotherapist at the world-renowned neuromuscular centre of excellence, Great Ormond Street Hospital for Children, shares her knowledge and expertise in this series.
Read moreLearning and behaviour in Duchenne
Those living with Duchenne muscular dystrophy are more likely to experience learning difficulties and behavioural issues.
Read moreVideo for assemblies
The living with Duchenne animation video was created by a team of young people living with Duchenne to help children living with Duchenne understand more about their condition.
Read moreAbout Action Duchenne
We are a community-led charity, putting our Duchenne young people, adults and their families at the forefront to meet their needs. Our Support Officers talk to over 1000 families living with Duchenne every year.
Read moreFundraising at school
Your school’s fundraising will help to increase awareness of Duchenne muscular dystrophy in your local community and enables us to continue our life-changing work. Everything you need to get started can be found in our dedicated area.
Read moreStaying in touch
- Please sign up for our newsletter, so you can keep abreast of all events, developments and the work we do in the community here.
- Please consider becoming a valued Member of Action Duchenne, to help us continue our life-changing work here.
- Please follow us on your chosen social media channel, as we post regular updates.
