Latest news

  • Trevor and Lucy become Ambassadors for Action Duchenne

    We are delighted to announce our friends and long-time supporters of the charity, Trevor and Lucy, are our new Action Duchenne Ambassadors! Read more

  • Santhera announces idebenone study results

    Santhera announces long-term effectiveness of idebenone in slowing the decline of breathing function in Duchenne Read more

  • Raxone: A Guide for the Community

    In partnership with fellow organisations, Muscular Dystrophy UK, Duchenne UK, the Duchenne Family Support Group, and DMD Pathfinders, we have produced two guides for families and healthcare professionals to educate and answer questions on the drug and EAMS process. Read more

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