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Latest news

  • EAMS, Raxone and the MHRA

    Last week our Director of Campaigns & Strategy, Peter Duffy, attended a meeting at The Medicines and Healthcare products Regulatory Agency (MHRA), as part of the Patient Group Consultative Forum. Read more

  • Catabasis announces plans for global trial of edasalonexent

    Catabasis announces plans to start a global phase 3 trial to test the safety and effectiveness of a potential drug called edasalonexent in people living with Duchenne muscular dystrophy. Read more

  • Action Duchenne skydive 2018 was amazing

    A huge THANK YOU to the 12 amazing fundraisers who jumped out of planes across the country for Duchenne muscular dystrophy this weekend! Read more

Latest events

  • Shark Encounter

    Not for the faint of heart, this is really an amazing challenge not to be missed. Read more

  • Liverpool Nightrider 14-15 July 2018

    This fun charity night cycle takes place in Merseyside, the perfect backdrop for the best night out. Explore the top sights, latest attractions, famous landmarks and discover some lesser well known treasures in Liverpool and the Wirral. Read more

  • Rough Runner - Edinburgh 18-19 August 2018

    Inspired by game shows such as Total Wipeout, Takeshi’s Castle, Gladiators and Ninja Warrior, expect sweeper arms, giant pigeon battles, big balls and yes, The Travelator! Read more