Latest news

  • Duchenne Parent Project International Conference

    This weekend our Director of Research, Neil Bennett, and our CEO, Shelley Simmonds, are in Rome attending the Duchenne Parent Project International Conference. Read more

  • Golf Club raise £3,050 in villa raffle

    Last weekend, our wonderful supporters Stoke By Nayland Golf Club held their much anticipated raffle draw. The prize was a week in a luxury villa in Cyprus, with space for 8 people to enjoy the pool, sun and gorgeous relaxing surroundings. Read more

  • Solid Biosciences announce preliminary trial results

    Solid Biosciences have announced preliminary data from their IGNITE-DMD clinical trial that is testing the safety and effectiveness of an adeno-associated virus (AAV) gene therapy. Read more

Latest events

  • Events Fundraising 2019

    New year, new you? So far we have had a huge amount of sign ups for our events through 2019! What challenges are YOU ready to take on? Sign up now Read more

  • 24 hour cycle and family after-party

    In 2018 Duchenne Dad, Lex Ellison cycled for 24 hours between St Neots and Godmanchester. He covered the route over 20 times, reaching a total of 214 miles. This year, you are invited to take part! Read more

  • Plymouth bucket collection Friday 19 April

    We'll be collecting in Plymouth City Centre on Friday 19 April and would love for you to come along and join us! Read more