Community Summit 2026 Agenda and Sponsors

Community Summit 2026 Agenda and Sponsors

Community Summit Agenda, as of 3 November 2026 Download

To view our event sponsors, click here.

We are delighted to share the agenda for the Action Duchenne Community Summit 2026. Two powerful days packed with:

Knowledge

Information that helps you navigate today and plan for tomorrow

Community

Connecting people who understand

Care

The support that improves quality of life

1-1 Information and Support

Personalised guidance when you need it most

Hangout Zone (Ages 4-16+)

A Space to Relax, Play and Connect

Creche (Under 5s)

Supporting Families with Young Children

Wellbeing Zone

Take Time for YOU

Exhibitor Expo

Discover Resources, Services and Support

Action Duchenne Residential Weekends: “Adventure is still possible“ With a Duchenne diagnosis, it often feels that there is an ever-growing list of things that become more difficult. The freedom to choose to take part in activities, to continue hobbies or even just to pop round to a friend’s house changes into something that needs planning, …

Honouring George and Finding Community

Honouring George and Finding Community Remembering George one year on. “If I’d never experienced George having Duchenne, I wouldn’t be half the person I am now. He taught me so much about life. I truly believe that boys with Duchenne are just the most awesome people in the world.” On Sunday 26th April 2026, Louise Ruddick ran the …

Turning Challenges into Change – Our Story with Action Duchenne

I was introduced to Action Duchenne by the Muscle Team in Newcastle shortly after Oliver’s diagnosis in 2017. In those early, overwhelming days, their support meant everything. Members of the Support Team would call just to let me talk, vent, cry — whatever I needed. They were simply there, and that’s why I choose to support them every …