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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • In-Person Support Events
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Welcome to our Runner Hub

You are here: Home / Welcome to our Runner Hub

Running for our small charity is incredibly rewarding. Not only can it boost your physical and mental wellbeing, but it also gives you the empowering feeling that you’re helping us support, equip, and uplift every DMD community — from diagnosis and throughout their journey.

Please note: Our injury‑prevention and nutrition guidance has been written by our Outreach Officer, Alex Berbank who is a former elite athlete and previously trained as a physiotherapist. However, if you are making any sudden or significant lifestyle changes, we always recommend consulting your GP first.

We’re thrilled to have you on Team Action Duchenne. Every year, incredible people like you take on running challenges to raise vital funds for our work. We want you to enjoy every moment of this experience and to feel fully supported by us from start to finish.

Before you get going, it’s important to make sure you’ve chosen the right distance and feel genuinely excited about the challenge ahead. Asking yourself a few key questions now will be essential in helping you reach race day feeling confident and prepared.

Take a moment to check in with yourself. Consider the following:

How is your overall health right now?
How busy is your work schedule?
What other commitments or responsibilities do you have?
How will you realistically fit training into your routine?
Do you have any existing niggles or injuries that running could aggravate?
Do you have friends, colleagues or family members who can help you reach your fundraising target?
Is there anything in particular that’s worrying you?

If any of these questions raise concerns for you, please get in touch with us. We want to ensure you feel confident that you’ve chosen the right race and the right distance. And if this event isn’t quite the right fit, we’ll happily help you find an alternative challenge.

Feeling ready and excited? That’s exactly what we hope for.

If everything feels positive and you’re eager to get started — wonderful! We are here to support you with anything you need along the way.

You’re not doing this alone. You’re part of a community of Action Duchenne Champions, and we’re behind you every step of the journey.

Runs and Challenges

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Training Plans and Injury Prevention

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Nutrition for runners

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Fundraising ideas

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From our community

Turning Challenges into Change – Our Story with Action Duchenne

I was introduced to Action Duchenne by the Muscle Team in Newcastle shortly after Oliver’s diagnosis in 2017. In those early, overwhelming days, their support meant everything. Members of the Support Team would call just to let me talk, vent, cry — whatever I needed. They were simply there, and that’s why I choose to support them every …

Louise’s London Marathon Story

Louise’s London Marathon Story Written by Louise Ruddick “My relationship with Action Duchenne came about very spontaneously at the beginning of January this year. My brother, George, was diagnosed with Duchenne back in 1992, just before his third birthday. He was obviously too young to be aware however the impact that it had on our …

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it”  Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

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Action Duchenne
5th Floor, Mariner House
62 Prince Street
Bristol
BS1 4QD

07535 498 506
info@actionduchenne.org 

 

 

 

 

 

 

 

 

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