1:1 Information and Support
Your Questions, Your Journey: Meet One-to-One with Experts
1:1 Expert Sessions at the Action Duchenne Community Summit 2026
One of the things the Duchenne community consistently tells us is how valuable it can be to speak directly with someone who understands. That’s why we are delighted to bring back our dedicated one-to-one expert sessions for a second year at the Action Duchenne Community Summit 2026.
These 20-minute individual sessions offer a supportive and confidential space to ask questions, explore practical solutions, and discuss the topics that matter most to you and your family.
Whether you’re looking for advice, guidance, or simply the opportunity to talk through a specific challenge, our expert professionals are here to listen and help.
Important Information
Please note that these 1:1 sessions are intended to provide information, guidance, and support.
They are not designed to replace individual medical, psychological, legal, or other professional advice, diagnosis, or treatment. If you have concerns about your own or your child’s healthcare, wellbeing, or personal circumstances, please seek advice from the appropriate clinical or professional team.
Meet the Experts
Book a one-to-one session with one of the following specialists:
Professor David Schonfeld
International expert in child wellbeing, resilience, and supporting families through challenging life experiences.
Rachel Morris MBE
Paralympian and disability advocate specialising in accessible sport, physical activity, and participation.
Marion Main and Jose Longatto
Specialist Neuromuscular Physiotherapists supporting ambulant individuals living with Duchenne.
Nicola Burnett
Specialist Neuromuscular Physiotherapist supporting non-ambulant individuals living with Duchenne.
Emma Simmonds and Maria Sherwood
Specialist Advisers offering guidance on education, transition planning, and opportunities for young people with complex disabilities.
Booking Information
Bookings for the one-to-one sessions will open soon.
Further details, including how to reserve your session, will be shared with registered Community Summit attendees.
Spaces will be limited, so we encourage attendees to book early once registration opens.
We look forward to helping you connect with the expertise, guidance, and support that can make a difference on your Duchenne journey.
