Action Duchenne was established in 2001 to support children, young people, adults, and their families living with Duchenne muscular dystrophy. It is a community-led charity, proud to work with partner organisations to address the unmet needs of the community through designing programmes and services that maximise resources.
THE FUTURE: OUR 10 YEAR AMBITION
It’s important for all children born in the years to come to be free from a life limited by Duchenne muscular dystrophy. We will work towards;
● The availability of better treatments
● Improved care and life expectancy
● Families having the knowledge they need
● People gaining acceptance more quickly than they do today
● A significantly increased science education and research programme
● Appropriate support pathways for families starting at diagnosis and continuing throughout their lives
● Opportunities for people living with Duchenne don’t have to be sought, they just exist – university, jobs etc.
● A much wider reach for all our projects – nationally and internationally
● Respite centre(s) available for families
Leave a gift in your Will
Leaving a gift in your Will helps to create this future, and keep the important work we have started going. The donation can be as small or large as you like, every gift makes a difference to our cause. Should you wish to, you can choose to leave a legacy for a specific project or activity close to your heart.
How to leave a gift in your Will to us
- Decide what type of gift you want to to leave us – Pecuniary gifts – a set amount of money, Residuary gifts – a percentage, or the whole, of your estate (what’s left after other specified gifts, costs, and tax) or Specific gifts – a specific object, asset or property
- Get advice and read guides on making a Will from a source that you trust
- Contact your solicitor or Will writer and provide them with details of our charity and the gift you would like to leave us.
It was a hugely helpful day for us in clarifying a lot about our son’s potential future and reassuring us that there is more hope than we imagined.
Science Education Workshop Participant
If you would like to discuss leaving a gift in your will please contact fundraising@actionduchenne.org
