DMD Care UK will host a webinar to summarise the evidence for vamorolone as a treatment for Duchenne muscular dystrophy (DMD), and provide an opportunity for families to ask questions to an expert panel.
We hope you can join us for the event to share your experiences and questions with the panel.
What to expect
To enhance community support, DMD Care UK is hosting a live webinar event where leading clinicians and representatives from our team, Duchenne UK and Muscular Dystrophy UK, will join a panel to offer insights and directly address any questions you may have about the treatment.
The clinician speakers/panellists will be:
- Professor Michela Guglieri – John Walton Muscular Dystrophy Research Centre, Newcastle
- Dr Anne-Marie Childs – Leeds Teaching Hospital NHS Trust
- Professor Tracey Willis – The Robert Jones and Agnes Hunt Orthopaedic Hospital, Oswestry
- Dr Jarod Wong – Glasgow Royal Children’s Hospital
- Neeru Nalik – Muscular Dystrophy UK
- Alex Johnson – Duchenne UK
- John Marrin – Action Duchenne
A summary of the latest scientific evidence on vamorolone for the treatment of DMD has been developed by DMD Care UK in collaboration with the North Star Clinical Network and the DMD patient community. This resource is designed to provide patients and families with up-to-date, accessible information.
Unable to attend?
The webinar will be recorded and made available via the DMD Care UK website after the event.
