From start to finish was amazing. We came away with a wealth of knowledge and new friends. All the Action Duchenne staff made us feel more than welcome at our first Duchenne conference and couldn’t have been more helpful. - Newly diagnosed parent

Action Duchenne’s 16th International Conference is the preeminent Duchenne & Becker muscular dystrophy event in the UK.

The world around Duchenne is constantly changing, with new standards of care, research, clinical trials and updates coming through constantly.

Join us on 9-11 November for a weekend dedicated to giving you knowledge, power and hope.

We anticipate attracting at least 600 delegates from more than 30 countries to Birmingham, made up of families, clinicians, therapists, researchers, pharmacological companies and, most importantly, those living with Duchenne and Becker muscular dystrophy who attend for free.

  • Newly diagnosed families – get answers to all your questions from the experts, from steroids to clinical trials, physiotherapy to genetics, the Conference is your one-stop shop to help you gain crucial information about your child’s condition

  • Young people and siblings – the Conference is a truly family-friendly event and we welcome all ages! Come and have fun in ‘The Hang Out’. We have loads of exciting activities for young people. Bring siblings too and meet other young people from the Duchenne community

  • Adults living with Duchenne – join the DMD Pathfinders as they delve into important issues about how to live your best life, from breathing and physio to sex and relationships.

  • Research updates – hear from global experts and pharmaceutical companies as they give you up to the minute news on potential treatments, standards of care and technological advances in the Duchenne community

Make the conference weekend a family break away

The Action Duchenne International Conference is for the whole family to enjoy.  Last year we welcomed all ages, from babies to Grandparents, cousins to friends and we all had a ball! We'd love you to join us again this year and have a wonderful weekend together, alongside learning about everything you need to know about Duchenne. 

  • Free kids' club (creche)

  • 'The Hang Out' with activities for youngsters running all weekend

  • Let your hair down at the Gala Dinner at the Hotel on Saturday evening. We have a brilliant band returning for their second year at the conference, i-Party, along with a raffle and a place to meet people in a friendly, relaxed environment. 

  • Hotel amenities such as swimming pool, gym and a variety of bars/restaurants

  • Nearby cinema complex with a range of places to eat

Conference checklist

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