Join 600 families and people from the International Duchenne community over 3 days at the Action Duchenne International Conference Friday 9 to Sunday 11 November at Hilton Birmingham Metropole.

With so much promising research and potential treatments coming through, the Action Duchenne International Conference is the best place in the UK for families and people living with Duchenne and Becker to get up to the minute news and information.

Meet global experts including, researchers, clinicians, physiotherapists, doctors and pharmaceutical companies. 

Share your experiences and get support from Duchenne parents, friends, family, people living with Duchenne and Becker.

Something for everyone

The Action Duchenne International Conference provides young and adults living with Duchenne and their families an opportunity unlike any other in the UK.

FREE for all people living with Duchenne (including carers) you will find out about cutting edge technology, research and health and well-being.

Adults, families and young people will gain practical support from mentors and will be inspired by the DMD Pathfinders.

Keeping the conference FREE for people living with Duchenne is paramount for us.

The venue is also fully accessible.


The conference is your one-stop shop to help you gain crucial information about your child or young person’s condition.

Get answers to all your questions from the experts, from steroids to clinical trials, physiotherapy to genetics.

From start to finish was amazing. We came away with a wealth of knowledge and new friends. All the Action Duchenne staff made us feel more than welcome at our first Duchenne conference and couldn’t have been more helpful. - Newly diagnosed parent

Family friendly event

The Conference is a truly family-friendly event.  Last year we welcomed all ages, from babies to grandparents, cousins to friends and we all had a ball! Join us this year and have a wonderful weekend together, alongside learning about everything you need to know about Duchenne. 

  • Free kids' club (creche) book your place now

  • In 'The Hang Out' we have loads of exciting activities for young people running all weekend, including wheelchair dance, gaming, Kurling & Boccia, graphic design, skills for life. Bring siblings too and meet other young people from the Duchenne community.

  • Let your hair down at the Gala Dinner at the Hotel on Saturday evening. We have a brilliant band returning for their second year at the conference, i-Party, along with a raffle and a place to meet people in a friendly, relaxed environment. 

  • Hotel amenities such as swimming pool, gym and a variety of bars/restaurants

  • Nearby cinema complex with a range of places to eat


Book your accommodation at the Hilton Birmingham Metropole using our special group discount rate.

Price for a single room is £117 inc VAT (add £10 for double occupancy).

However if you wish to stay elsewhere we have a list of some nearby hotels.

Read more about booking your accommodation.

Conference checklist