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  • Challenge 79 for World Duchenne Awareness Day
  • About Us
    • Our vision
    • Our Strategy
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    • Our Impact
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    • Volunteer
    • The DMD Registry
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    • Support Calendar – What’s On
    • Support for you and your family
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
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    • Siblings
    • End of Life and Bereavement
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    • SAVE THE DATE for the Action Duchenne Annual International Conference 2025
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    • Annual International Conference 2023 Video Recordings
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      • Webinar Series 2025
      • Webinar recordings
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      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
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      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
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A day to remember for Duchenne families with Alder Hey Children’s Hospital

You are here: Home / News / A day to remember for Duchenne families with Alder Hey Children’s Hospital
A day to remember for Duchenne families with Alder Hey Children’s Hospital

July 2, 2024 by DawnAD

On Thursday May 30th, we supported Alder Hey Children’s Hospital hosting a special event for families affected by Duchenne muscular dystrophy (DMD). This event was held at the World Museum in Liverpool.

The families day was a mix of support, fun and creating a strong sense of community attendees.

The children had a great time playing in the play area, joining in with arts and crafts such as making a superhero mask and scrapbook with the parents helping alongside them.

It was a fantastic atmosphere which was filled with laughter and was heartwarming to see children making new friends and having fun.

One of the most significant aspects of the day was the opportunity for families to share their experiences, offer support and build new friendships. Families expressed their appreciation for a fantastic event and are keen to see more of this in the future.

Alder Hey’s family’s day was a memorable event, showcasing the power of the community. The connections the families gained will undoubtedly continue to inspire and uplift families long after the day ended. 

These days are the reason why I joined Action Duchenne and seeing the connections that families make is so uplifting for all involved. I understand these days can be hard to attend for many reasons but if you’re interested in attending other days like this please feel free to reach out and we can work out a way to make these days happen for you. Contact me: dawn@actionduchenne.org

Well done Alder Hey!

You’re Invited

Our 2024 Annual International Conference will be held on Friday 8th and Saturday 9th November 2024. The conference brings together families, clinicians, researchers and experts for 2 days of sharing knowledge and experience. It is an amazing opportunity to come together as part of the Duchenne community

Register NOW

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