On Thursday May 30th, we supported Alder Hey Children’s Hospital hosting a special event for families affected by Duchenne muscular dystrophy (DMD). This event was held at the World Museum in Liverpool.
The families day was a mix of support, fun and creating a strong sense of community attendees.
The children had a great time playing in the play area, joining in with arts and crafts such as making a superhero mask and scrapbook with the parents helping alongside them.
It was a fantastic atmosphere which was filled with laughter and was heartwarming to see children making new friends and having fun.
One of the most significant aspects of the day was the opportunity for families to share their experiences, offer support and build new friendships. Families expressed their appreciation for a fantastic event and are keen to see more of this in the future.
Alder Hey’s family’s day was a memorable event, showcasing the power of the community. The connections the families gained will undoubtedly continue to inspire and uplift families long after the day ended.
These days are the reason why I joined Action Duchenne and seeing the connections that families make is so uplifting for all involved. I understand these days can be hard to attend for many reasons but if you’re interested in attending other days like this please feel free to reach out and we can work out a way to make these days happen for you. Contact me: dawn@actionduchenne.org
Well done Alder Hey!
You’re Invited
Our 2024 Annual International Conference will be held on Friday 8th and Saturday 9th November 2024. The conference brings together families, clinicians, researchers and experts for 2 days of sharing knowledge and experience. It is an amazing opportunity to come together as part of the Duchenne community
Entrada Therapeutics Reports Positive Preliminary Data in Healthy Volunteers from Phase 1 ENTR-601-44-101 Trial for Duchenne Muscular Dystrophy