Action Duchenne exists to support, empower and equip every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne, and has a number of staff with direct lived experience.
We expect our values—Supportive, Empathetic, Respectful, Community Focused, and Inclusive—to be demonstrated in every interaction, decision, and process, creating a workplace where people feel valued, heard, and connected.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
- Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
- Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
- Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
- Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
- Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
