Action Duchenne exists to support, empower and equip every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne, and has a number of staff with direct lived experience.
We expect our values—Supportive, Empathetic, Respectful, Community Focused, and Inclusive—to be demonstrated in every interaction, decision, and process, creating a workplace where people feel valued, heard, and connected.
At Action Duchenne, values are more than words—they shape how we work and interact every day.
- Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
- Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
- Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
- Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
- Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
