We know that Duchenne impacts everyone, not just the immediate family. It can be tough for those who love someone with Duchenne to know how and where to go to understand more about Duchenne, to know how to help their loved ones or to access support. There many things you’d like to ask that you don’t want to bother the parents with. Perhaps you want to talk about how to explain Duchenne to your children, to understand the progression of Duchenne or to learn about what research is taking place, Open Space is our session for anyone connected to Duchenne, from aunties and uncles, adult siblings and family friends to professionals, school staff and clinicians working with someone living with Duchenne.
We’ll have speakers who can answer your questions, meet others who really understand and be part of a network of support. We are stronger together.
