Action Duchenne launches Webinar Series 2025
Action Duchenne brings a great initiative to further support the Duchenne community through their Webinar Series 2025. We welcome you to join us during this remarkable journey to shine a spotlight on the most challenging and important areas of Duchenne muscular dystrophy. Together we can navigate the complex environment that a Duchenne diagnosis brings to better support our loved ones, ourselves and build lasting friendships and support networks along the way.
What is it?
We will bring international and national experts to you and focus on one set theme per week, discussing multiple educational virtual sessions relating to that specific area. The sessions can be 30-60 mins long with time for questions from the community. The sessions will be conducted on zoom, virtually with an expert speaker and members from the Action Duchenne team. We will continue to shape the initiative throughout the year based on the feedback we receive from you; the aim of the series is to provide cutting-edge and engaging talks about Duchenne muscular dystrophy without the need for you to step out of the comfort of your home. We aim to empower you to make the best-informed decisions for yourself and your loved ones. This initiative will not only connect our Duchenne community with the subject matter experts nationally but also provide a global virtual platform for our international community.
Who is it for?
The target audience for the webinar series is all the stakeholders of Duchenne muscular dystrophy including :
- Clinicians
- Research fellows
- Academics
- Nurses, genetic counsellors
- Special Educational Needs Coordinator, Emotional literacy support assistants, teaching assistants and teachers.
- People living with Duchenne, their carers, extended family (parents, uncles, aunts, grandparents, siblings, friends, colleagues, personal assistants).
- Pharmaceutical company and biotechnology company representatives
- Newly diagnosed families
- Patients transitioning into adulthood
- Expanded reach to international families (who would otherwise not have access to these resources).
When
The series will run every month, from March to October. The first webinars in our 2025 series will be hosted by international experts who will discuss how to cope with diagnosis and dealing with neurodiversity in Duchenne.
Find out more about our first webinars with Professor David Schonfeld.
To attend the series, you will need to register for each session on EventBrite.
We look forward to welcoming you to our webinar series 2025. Together we can make a positive difference by shining a spotlight on Duchenne.
