The hundreds of children, young people and adults living with Duchenne muscular dystrophy (DMD) in the United Kingdom and their families face many challenges which have been exacerbated by COVID-19 and lock-down.
At a time when many people in the general population are re-emerging from the past 18 months of lock-down, the lasting effects of isolation are manifesting in the Duchenne community in a unique way. Parents with children and young people living with Duchenne are feeling not only the physical but also psychological pressure of lockdown.
Home-schooling and the social isolation of being away from peers, friends and family is often compounded in children with Duchenne, since the prevalence of ADHM, ADD and Autism are comorbidities of the condition.
Pears Foundation, Contact and the Department for Digital, Culture, Media & Sport have given us a grant to help us continue the work we have been doing during lock-down through peer-to-peer support for families living with Duchenne for a further six months.
We are delighted to receive this second grant from the Pears Foundation, Contact and the Department for Digital, Culture, Media & Sport. It is vital that we continue our life-changing support work within the Duchenne community, and this grant will help to make this possible for the next six months.
Florence Boulton, National Director
Dad completes amazing endurance event challenge for Action Duchenne
