Action Duchenne represent our community at bone protective therapy ENMC workshop

Bone Protective Therapy in Duchenne MD

Our DMD Registry Curator, Angela Stringer recently attended the 236th EMNC International Workshop:  Bone protective therapy in DMD 1-3 June 2018 in Hoofddorp, The Netherlands.

Attending the workshop were national and international neuromuscular and bone specialists along with patient groups and adults living with Duchenne.

A full report will be published in the magazine Neuromuscular Disorders, but in the meantime you can read an overview of the lay report on the ENMC website.

Many of you recently took part in an online survey on clinical trials to improve bone health in Duchenne Muscular Dystrophy.  The results of this survey were discussed at this workshop and presented by Dr Shuko Joseph. The survey forms part of the phd studies of Dr Shuko Joseph (Academic Clinical Training Fellowship in Duchenne Muscular Dystrophy) co-funded by the Chief Scientist Office Scotland, Action Duchenne and Muscular Dystrophy UK.  We will let you when you can see and read the full results of the survey when they are published.