An Evening With Action Duchenne
Join us for an evening with Action Duchenne on Tuesday 20th October 2026
At Action Duchenne we believe that when people affected by Duchenne Muscular Dystrophy receive proactive, community-led support throughout life, they are better equipped to navigate challenges, make informed choices, build supportive relationships and have their voices heard. We have been providing this vital support for 25 years which we know improves wellbeing, creates resilience, a greater independence and a better quality of life. But we want to do more – we want to reach more families, more boys and men and provide even more tailored support.
As we celebrate 25 years of supporting families affected by Duchenne Muscular Dystrophy, we invite the people and organisations who have been a part of our journey to join us. This special evening is an opportunity to reflect on the impact we have achieved together, share the progress we are making today and look to the future with ambition, collaboration and hope to ensure every family receives the support they need and that progress continues for generations to come.
Join our new CEO Katie Endacott who will be talking about our impact and our vision, and how we will get there. Hear from our Director of Services and Safeguarding, Clare Grant about our plans for building on our current support provision to ensure that our boys and men living with Duchenne have a better quality of life at every stage. Our Chief Scientific Officer, Dr Mehreen Arif will expand on her work around supporting families to navigate an increasingly complex and rapidly evolving landscape of research, treatments, and care. Susie Croft, Director of Fundraising and Communications will be talking about future proofing the charity so that we can continue to be there for families so that no-one will ever have to face their journey alone.
So, whether you are a newly diagnosed family, have been accessing our support for some time, one of our healthcare, education or social care partners, a supporter, a funder or someone committed to improving the lives of those affected by Duchenne Muscular Dystrophy, we would be delighted if you can join us. Please do spread the word to anyone you think might be interested in learning more about Action Duchenne.
The free online event will take place at 6.30 on Tuesday 20th October.
