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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • In-Person Support Events
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Adults with Duchenne

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Watch the session recordings from our Annual Conference 2022. In this section, you can browse the recordings from the session “Adults with Duchenne”

Accessible Travel

22 December 2022 by Robbie Handley

Panel participants share their experience with travelling, any tools or resources that they find particularly helpful. Speakers: Tom Kelly; Sanjeev …

Accessible TravelRead More

Transitioning into adulthood from pediatric services Mahalekshmi Desikan

22 December 2022 by Robbie Handley

Transition from paediatric to adult services Speaker: Mahalekshmi Desikan …

Transitioning into adulthood from pediatric services Mahalekshmi DesikanRead More

Peer lead – experiences of adult care

13 December 2022 by Robbie Handley

Panel participants share their experience with the care they have received. Speakers: Ravi Mehta; Like Millington; James Parkin. …

Peer lead – experiences of adult careRead More

Living independently and building a care team

13 December 2022 by Robbie Handley

Living independently and building a care team. Panel participants share how they built a care team around them and the resources that help in living …

Living independently and building a care teamRead More

Accessible Gaming

13 December 2022 by Robbie Handley

Panel participants share their experience with accessible gaming and provide guidance regarding any tools or resources they find particularly helpful. …

Accessible GamingRead More

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