Fighting for the future While we continue our much needed day to day work supporting our families, I want to share with you the recent developments …
Lighter Days and Warmer Months
Lighter Days and Warmer Months As we head into Spring, it is wonderful to begin to see the longer lighter days, the flowers beginning to bloom and …
Continuing to come together
Continuing to come together 2023 has already brought meaningful victories as we rally science to our support. In January we heard that NICE has …
Starting 2023 with hope
Starting 2023 with hope I want to begin by wishing all of you a very happy new year and sharing the hope that 2023 will be a year of positive …
Reflection and celebration
A blog by Florence, National Director As we move toward the end of 2022, I’ve been looking back on the year we've had and reflecting on both the …
International Conference and Community
International Conference and Community Blog by Florence, National Director Hello everyone! I am glad to be back sharing with you my updates …
Florence’s blog October
This month has been a time for real reflection for millions of people across the UK, The Commonwealth and the entire world. The passing of Queen …
Exciting announcements
Florence Boulton's blog - National Director World Duchenne Awareness day 2022 On the 7th September (7/9 a nod to 79 exons on the dystrophin …
Capturing highs and lows
Blog by Florence Boulton, National Director Invitation to Action Duchenne International Conference 2022 ‘Educating, enabling and including’ is …
A postcard from Florence
This past fortnight, Florence, our National Director has joined Mehreen and Alex at the Science on Tour workshops in Birmingham and Newcastle. …
Seizing control empowering adults by transforming transition
Blog by Florence Boulton, National Director Last week I had the opportunity to join our first session in the ‘Yes I can’ transition to adulthood …
Seizing control empowering adults by transforming transitionRead More
Scrutinising the science of Duchenne
Blog by Florence Boulton, National Director Wow, what a day! After months of hard work, we finally pulled out all the stops today, kicking off the …
