This article is written by Florence Boulton, National Director “We are all stronger, together” is a fantastic motto, but it’s even better when put …
Springing into action
A message from our National Director, Florence Boulton It was 2 years ago when I first joined my new team around a table in a meeting room in …
Farewell 2021, welcome 2022
A message from our National Director, Florence Boulton Another year has flown by! A very Happy New Year to all my colleagues, partners, families …
Happy Holidays from our National Director
It’s beginning to look a lot like Christmas! This week, we’ve launched our Action Duchenne Santa’s Grotto; a little thank you to our …
International Conference and community
Blog by Florence Boulton, National Director - written in Cambridge just after we finished delivering the Action Duchenne International Conference …
A weekend to remember
Last weekend, I had the utter privilege of travelling to Northern Ireland to visit one of our incredible Duchenne families and their community of …
Fond farewells, thank yous and future plans
Blog by Florence Boulton, National Director Welcome to this month’s blog, the most part written during our steaming hot heat-wave, and most …
Unfurling after the storm
Before I start my usual blog this month, I wanted to acknowledge a Duchenne family who have been through immeasurable devastation this week. On behalf …
Re-emerging from lockdown
by Florence, National Director The past 18 months in lockdown have been undoubtedly difficult for most and devastating for many. What has come out …
Uplifting and empowering
By Florence Boulton, National Director This month seems to have been action packed for us here at Action Duchenne. You would think that after a …
A message from Florence Boulton on Rare Disease Day 2021
Dear International Duchenne Community, Today, we take a moment from our daily lives to raise awareness about our community and share what it means …
A message from Florence Boulton on Rare Disease Day 2021Read More
What a difference a year makes
Blog by Florence Boulton, National Director This month marks the anniversary of the day I joined Action Duchenne. I remember it well, at the Annual …
