It’s beginning to look a lot like Christmas! This week, we’ve launched our Action Duchenne Santa’s Grotto; a little thank you to our community …
International Conference and community
Blog by Florence Boulton, National Director - written in Cambridge just after we finished delivering the Action Duchenne International Conference …
A weekend to remember
Last weekend, I had the utter privilege of travelling to Northern Ireland to visit one of our incredible Duchenne families and their community of …
Fond farewells, thank yous and future plans
Blog by Florence Boulton, National DirectorWelcome to this month’s blog, the most part written during our steaming hot heat-wave, and most recently in …
Unfurling after the storm
Before I start my usual blog this month, I wanted to acknowledge a Duchenne family who have been through immeasurable devastation this week. On behalf …
Re-emerging from lockdown
by Florence, National DirectorThe past 18 months in lockdown have been undoubtedly difficult for most and devastating for many. What has come out of …
Uplifting and empowering
By Florence Boulton, National DirectorThis month seems to have been action packed for us here at Action Duchenne. You would think that after a year at …
A message from Florence Boulton on Rare Disease Day 2021
Dear International Duchenne Community, Today, we take a moment from our daily lives to raise awareness about our community and share what it means to …
A message from Florence Boulton on Rare Disease Day 2021Read More
What a difference a year makes
Blog by Florence Boulton, National DirectorThis month marks the anniversary of the day I joined Action Duchenne. I remember it well, at the Annual …
Holidays after lockdown
A blog by Florence Boulton, National Director(Robin by Duchenne Grandad, Julian Smith jpsart.net)As the nights are drawing in and the temperature is …
I have so much to share with you
A blog by National Director, Florence Boulton….and we’re back down to earth after the crazy (but exciting) weeks in the run up to our 2020 …
Recognising the power of our community
A message from the National Director, Florence BoultonThe past four weeks, since I last wrote to you all, has been a rollercoaster of extreme highs …
