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  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Challenge 79

You are here: Home / Challenge 79

Challenge 79 – Created with You in Mind

The dystrophin gene is one of the largest genes in the human body, and it’s made up of 79 exons (pieces of a gene). The body puts these 79 exons together to create the full dystrophin protein, which is essential for keeping muscles strong and stable. If one or more exons are missing or faulty this can lead to Duchenne muscular dystrophy.

We invite you and your family to take part in Challenge 79—a simple, creative way to raise awareness and feel connected with the global Duchenne community.

Pick an activity connected to the number 79—big or small—and do it in your own way, at your own pace, with your favourite people throughout the month of September.

Need ideas?

  • Build with 790 LEGO bricks
  • Paint 79 rocks
  • Read 79 pages of your favourite book
  • Share 79 kind messages
  • Walk 7.9 miles over the month
  • Tell 79 reasons why your child is amazing 

Do it as a family, with your school, your workplace—or just for yourselves. There’s no wrong way to take part.

Why It Matters

Duchenne is life-changing. And we know it’s not just about one person—it affects your whole family, every single day.

We do this to raise awareness.To build a more inclusive world. And most of all, to show our children and young people that their lives matter, their voices matter—and they are never alone.

However you take part, you’re making a difference.

Every challenge, every post, every pound raised helps us continue our mission to support families and drive progress in research, treatment and care.

SIGN UP TODAY!

We’d love to see what you get up to! Send your photos to fundraising@actionduchenne.org or tag us on social media using @ActionDuchenne and #Challenge79

Let’s Lift Each Other Up

We’d love to celebrate your Challenge 79 stories.
📸 Send your photos to fundraising@actionduchenne.org
📱 Tag us on social media using @ActionDuchenne and #Challenge79

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