Community
Connecting people who understand
The Duchenne community is built on shared experiences, mutual support and a collective determination to improve quality of life.
Our Community stream creates space for honest conversations, shared learning and meaningful connections. Whether you are meeting others for the first time or reconnecting with familiar faces, these sessions celebrate the power of coming together.
Day 1: Living Well with Duchenne
Moving Forward: Living with Duchenne and Finding Your Way
Everyone’s Duchenne journey is different. Hear personal experiences, reflections, and practical insights on adapting, thriving and finding purpose through life’s changing seasons.
Neurodiversity: Understanding Cognitive and Behavioural Changes in Duchenne
Duchenne affects more than muscles. Gain a deeper understanding of the cognitive and behavioural challenges and strengths associated with Duchenne, helping families better support learning, communication and emotional wellbeing.
More Than Movement: How Sport Supports Mental Health
Sport isn’t just about physical activity. Discover how inclusive sport and recreation can boost confidence, improve mental wellbeing and create a sense of belonging.
Your Home, Made Simpler: Adaptations and Accessibility
Small changes can make a big difference. Learn how practical home adaptations can increase independence, reduce daily challenges and make life easier for everyone in the household. You’ll also discover where to find advice and support.
Day 2: Independence, Opportunity and Practical Support
Work, Purpose & Possibility: Employment for People Living with Duchenne
Hear from people living with Duchenne who are pursuing careers, education, volunteering and meaningful activities. Learn what’s possible when the right support is in place.
Driving Forward: Learning to Drive and Accessible Mobility
For many people, driving represents freedom. Explore options for learning to drive, accessible vehicles, adaptations and the practical steps that can help unlock greater independence.
Duchenne and Finances
Managing finances can feel overwhelming. This session will help you better understand benefits, grants, funding opportunities and financial planning, giving you the tools to make informed decisions and access the support available.
More Than a Chair: How the Right Chair Supports Independence and Health
The right wheelchair is about far more than mobility. Learn how the right chair can improve comfort, independence and participation.
Leave the sessions with practical advice, new ideas and real-world solutions that can make a difference to everyday life. Most importantly, you’ll hear from a community that understands the challenges and celebrates the possibilities.
