EHCP: Working with Local Authorities and Recognising Educational and Emotional Needs
Navigating the education system for a child with Duchenne and ensuring your child’s need are met can be challenging. In the first of our webinars focusing on education and healthcare, Janet Hoskin and Benjamin James will talk through their recent publication (also co-written by Jo Finch) ‘More than Just a Physical Condition’, which focused on the educational and emotional needs of children and young adults with Duchenne muscular dystrophy. For the second webinar in this section, we will be joined by Treloar’s School and College who will discuss the EHCP process and share their expertise on working with the Local Authority.
Join us to feel empowered and supported. Knowledge is power.
Monday 7th July, 6pm: ‘More than Just a Physical Condition’ – recognising the educational and emotional needs of children and young adults with Duchenne muscular dystrophy.
Janet Hoskin and Benjamin James will join us to talk about this important paper, sharing insights into the often misunderstood and underestimated challenges of supporting children and young people with Duchenne in educational settings.
Meet Our Speakers:
Dr. Janet Hoskin is an Associate Professor of Special Educational Needs and Disability at the University of East London (UEL). Janet leads groundbreaking research specifically focused on Duchenne muscular dystrophy and is a key member of the Rix Inclusive Research team at UEL, where she champions self-advocacy and social justice for people with learning disabilities. Janet is a co-founder of Action Duchenne which she set up with her partner in 2001 after their son Saul was diagnosed with DMD. In 2018 she edited ‘A Guide to Duchenne Muscular Dystrophy, Information and Advice for Teachers and Parents’ which is the first book to address learning and behaviour issues in DMD.
Benjamin James is a passionate Duchenne patient advocate and a member of the Pathfinders Neuromuscular Alliance. As a dedicated disability consultant and advocate within the Duchenne community, Benjamin has collaborated with multiple charities, leveraging his previous experience in healthcare communications at Intent Health to champion the needs of individuals living with DMD.
Monday 21st July, 6pm: EHCP and How to Work with Local Authorities
Join us for the second instalment of our ‘Education and Healthcare’ webinar series! We’re excited to host Maria Sherwood and Emma Simmonds from Treloar’s School and College on Tuesday, July 21st, at 6 PM BST. This webinar will provide invaluable insights into navigating the complex Education, Health
and Care Plan (EHCP) process and effectively collaborating with your Local Authority to ensure your child’s needs are met.
Meet Our Expert Speakers:
Maria Sherwood is the Head of Progress and Transition at Treloar’s School and College. Emma Simmonds is the Head of Admissions, Funding and Contracts at Treloar’s School and College.
Both Maria and Emma bring extensive expertise in EHCPs, developing individualised learning pathways, and integrating healthcare and therapy support for children with complex physical needs. They are dedicated to fostering academic and personal growth, ensuring every child receives tailored support. Having delivered popular and highly regarded talks at previous Action Duchenne conferences, Maria and Emma are uniquely positioned to share their knowledge and practical advice.
