The aim of this page is to enable A&E staff to access information immediately relevant to Duchenne muscular dystrophy.
It is essential that clinicians understand the specific needs of persons with Duchenne when formulating a response to an A & E admission.
Most people with Duchenne never need to go to an A&E, however this content has been produced to assist parents if their child with Duchenne is unwell and needs to attend hospital. Advice including recent lung function and heart checks will also be extremely useful for doctors.
You can download this information as a pdf file. You’ll be able to access that on your phone even without an internet connection.
Repiratory Management
Read moreGastrointestinal Problems
Read moreCardiovascular Disease
Read moreFractures
Read moreAnaesthesia and Surgery
Read moreUse of Opiates
Read moreSteroid Treatment
Read moreThe information in this guide was written by leading clinicians around the UK with support from Action Duchenne, Alex’s Wish, Duchenne Children’s Trust, Duchenne Now, Duchenne Research Fund, Joining Jack, Muscular Dystrophy UK and Treat-NMD.
