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  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with Others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
  • Support Us

Finding Help and Support: End of Life and Bereavement

You are here: Home / Finding Help and Support: End of Life and Bereavement

We want you to know that you are not alone and we are here for you. Searching the internet for support can be tough to do at this time, so we have made a list of some organisations that can offer help and support.

Duchenne Family Support Group

Family, Friends and Duchenne

Together for Short Lives

Child Bereavement UK

Cruse Bereavement Support

Bereavement UK

The Compassionate Friends

Childhood Bereavement Network

At a Loss

GOV.UK

NHS.UK

NHS Inform

Citizens Advice

The Good Grief Trust (Scotland)

Mind

Young Minds

End of Life Plan (Open Uni and BBC)

If you would like to have a chat, please email info@actionduchenne.org or call 07535 498 506

If you would like to have a chat please email info@actionduchenne.org or call  07535 498 506

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Action Duchenne have monthly online meet-ups for Duchenne dads, mums and grandparents, facilitated by our Family Support Officers and designed to enable connection with those who truly understand. A Duchenne diagnosis can often set people apart from the support systems they usually rely on. Our support groups mean you can meet people who know exactly …

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07535 498 506
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