We know how hard it is for Duchenne parents, carers and family members to find the ‘right’ words to talk with children about Duchenne muscular dystrophy.
Watch the recording of our session with crisis and bereavement expert, Dr David Schonfeld from March 2022.
The session will help you and your family find the words, and to understand more about yours and your child’s feelings and thought processes.
Things you might find helpful
Get support from us
Thank you for coming to us for help and support. Action Duchenne is here for you, whether you are a parent facing a new diagnosis, or an adult who has been living with the condition for some time.
Please contact us info@actionduchenne.org to arrange a time to chat to someone who understands, to share any worries you may have and to get support.
Digby receives his copy of The Abilities in Me DMD Book
