Join our At Home Superheroes!

Join our At Home Superheroes!

Ivelina, mum of Presian ( 5 year old DMD hero ), tells us what motivated her family to sign up for the Superheroes Summer Adventure.

“Since our son’s diagnosis June 2022 and realising we need help more than ever, we found the charity Action Duchenne supporting families of children with DMD. We have been turning to Action Duchenne for support with our questions around the diagnosis, possible clinical trials and EHCP application, I joined their support group of parents and attended Science on Tour workshop which was so helpful.

They are always there for us when needed.

We have been thinking of setting up a page for our son and ways to raise funds for this amazing charity, as this would mean they can continue helping families, and in the hope that more trials/treatments could be made available and a cure for our children one day. I was just too busy with the care for my child with DMD, his sister and my work to create own fundraising event, and when I found out about Superhero Series event this summer, I knew this is what we were going to be doing! I signed up my two children and myself, my husband will be supporting us.

We hope a lot of families join and we can contribute to Action Duchenne’s mission.”

8th July to 6th August

Join other Duchenne families for a (virtual) race to the world’s great destinations – all while fundraising from the convenience of your own home, local area or wherever you like! 

We are delighted to be an official Charity Friend of the Superhero Series powered by Marvel.

It is important to us to be able to offer inclusive events, making sure those living with Duchenne, their siblings, their parents and other family members and friends can all take part and make memories.