Upcoming Events

10:00 am – 2:00 pm, April 24, 2026 – Parent/Carers In-Person Meet-Up: Newcastle

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it” Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne Mum

Written by Victoria Edwards, Action Duchenne’s Fundraising Officer and mum to Dougie (who lives with Duchenne) and Allie. Feeling Blue “This Monday was Blue Monday, and wow… I really felt it. It was grey, drizzly, my son was up half the night and ended up off school from sheer tiredness. My daughter went in to …

“Making contact with Action Duchenne provided a lifeline”

“Making contact with Action Duchenne provided a lifeline”: Find out why Ben Dolling decided to run the London Marathon dressed as a parrot! Harry was diagnosed with Duchenne muscular dystrophy in 2019 Ben and his wife have 3 children: a daughter in year 3 and a son in his first year of university and Harry, …

Holiday Inn Express

Upcoming Events

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